Posts

Writing through Writers Block and Ginny and Georgia

Writer’s block is a bitch. Honestly, writing a blog whilst shielding is difficult. Most of the things you get inspiration from comes from everyday life. But what do you do when everyday life is the same 4 walls? You get writer’s block. With that being said, I watched the second half of Ginny and Georgia today and I am amazed. TV writers have moved away from candy floss TV and come up with Ginny and Georgia. Do not get me wrong, there are some candy floss moments for example the Character Hunter writing a song about Ginny, or doing an elaborate tap routine on her 16 th birthday down the halls of school… Not real life! Especially not realistic if you have multiple disabilities and look the way I do. There are no men tap dancing for me or writing songs about me. You may think by that paragraph that I don’t like the show… Oh, contraire my friend. Georgia is a single mother who has survived a lot in life, Max a lesbian high schooler, Marcus troubled teen having sex with Ginny, MANG h

End Run

Here in the UK, we are starting to see an ending to this pandemic hopefully. However, it is not a moment to get complacent. Just because we are seeing a possible end in sight to this pandemic it does not mean we “go back to normal”. It means the opposite. We do not know what will happen with this virus. All we know that it currently is able to be dealt with by the vaccine. Viruses however mutate and what works currently does not mean it will continue. We also do not know what will happen come wintertime. Keep safe and look after each other. When everyone is vaccinated we can hopefully keep out of lockdown, however, if you go nuts then there could be surges and we end up back inside. This is the time that we work together.

PIP Breaches Human Rights

I recently completed a course in Equality and Diversity and part of that course gives the student a major insight into the Human Rights Act.   Since completing the course I have realized the PIP Benefit breaches my Human Rights! So, I want to say, the MUST be a disability benefit that is not means-tested. The reason for this is that it entices disabled people to work. Most people with disabilities must make a decision about what will work for them, working, or being on benefits. The reason for this is that when a disabled person works, from my own experience 50%-60% of the disposable income from the salary goes to doing things to keep them in work. Therefore, their ability to do basic things like getting new glasses, getting a haircut, buying new clothes becomes more an occasional extra rather than something that they can do on a regular basis. This is why a non-means-tested disability benefit is important. It would help reduce unemployment in the country and bring more money in ta

Learning through annoyance

There is fun to be had with your disabilities. I recently had fun with a colleague who did not know what Dragon software was. This is something that has been around for a long while so to not know what it was is to me, ridiculous. I had said to her “I have dragon, to help me work”. The look of confusion on her face was amazing. I could see the cogs in her brain turning. She said to me “you have a dragon?” I looked at her in sheer surprise. For one thing I had not said that I had a dragon, I had said I have dragon. My response to this question was not to say, no it is speech-to-text software. That would have been the kind thing to do. My response was “Yes, I have a dragon, his name is Bob” and then I walked off. It is not something that I should be proud of but I am. Having disabilities is hard enough when people are not fully listening. I know it was a minor error on my colleagues’ part, but it is something that is frustrating. When I must think about everything I say and, seco

Dear Dhar Mann

Before I went to bed tonight, I was watching some of your videos. Because of this, I knew I had to write this. When something gets into my head, I can’t do anything else until I get it out. I know you will probably never read this and even if you do, you probably get 1,000,000 or more letters like this, so a response is negligible. So, I am under no illusion that I will get a response which is also why I am writing it on my blog. For me, your videos have been a lifesaver. To use your words “you see”. I grew up in a family where abuse ran wild. Some people call how I feel “Middle Child Syndrome”, I call it surviving abuse. My family’s mantra was “don’t trust what she says” or “what can we blame her for”. So, I didn’t have the best family life, and still don’t. Between the abuse I suffered and the undiagnosed autism I found myself in situations as an adult that I was ill-equipped to handle. This further put a wrench in any relationship with my family. I was told in my late 20s my

Are we going back to normality?

I know there is much talk about when we can go back to normal now that Boris has set out his road map. I am going to say that I will be cautiously optimistic about this. We had false hope at the end of the 1 st lockdown and we were again landed into the 2 nd lockdown. So, I am going to say I am cautiously optimistic. However, let's talk about the reality for those who are shielding and going back to “normality”. I have been shielding now since March 2020, and I have sustained muscle weakness. This rears its ugly head when I am trying to push myself to do extra steps the next day I am sore as hell. This would be 4000 steps and I hurt like hell. I am also autistic. I have been alone since March 2020 and I am uber concerned about my interactions back in the workplace. Honestly, I want to make sure that I am ok enough not to be running around hugging everyone. So for me, I am going to have to take the following steps that I will need to take to make sure that I am ok with being i

Shielding is HARD

Shielding is really hard. It is really hard especially when you are living alone. At the start of the pandemic, I felt like “I will power through this”. Honestly now, I am considering teaching my guinea pigs Italian so that they respond to commands in Italian. I had to stop learning Italian because I realized that my talking to myself had evolved from speaking to myself in English to speaking to myself in Italian. It is also hard when you are having to shield off your own back and have no support from the government as their ideas on asthmatics is flawed. The physical implications to shielding as well have not been good. I now struggle with muscle weakness which means I am having to go to physio bi-weekly… SOOOO MUCH FUNNNN. If you are struggling with shielding and living alone I would ask that you all remember that it is ok not to be ok. I will repeat that, IT'S OK NOT TO BE OK! Seek help if you need it and please remember you will be ok. Stay safe and well out there,